Support organization (under the French Law of 1901)
Go Noah!
En Avant Noah is a nonprofit organization founded in 2020 to support Noah, a young man with Steinert’s myotonia, in his daily life, his education, and his medical care.
Pathology
What is Steinert's disease?
Steinert's myotonia is a rare genetic disorder that affects the muscles. It causes severe fatigue, muscle weakness, and difficulty relaxing the muscles after exertion.
This condition can also affect other bodily functions, making daily life more challenging and requiring appropriate medical and educational support.
Coming soon
Events
Discover the key moments that mark our year
LÀ-BAS IN CONCERT
Saturday, August 30, 2025
Chilly, France
The En Avant Noah association organized a major musical event featuring a live concert by the band Là-Bas – 100 % Goldman in Chilly. Nearly 300 people attended to enjoy a lively, family-friendly, and community-spirited evening featuring Jean-Jacques Goldman’s greatest hits.
FRIENDSHIP TOURNAMENT
Saturday, June 21, 2025
Frangy, France
For the annual Friendship Tournament organized by FC Frangy, several members of the En Avant Noah association formed a team to represent the organization. It was a day marked by solidarity, sports, and good cheer, filled with laughter and wonderful memories.
NOAH CELEBRATES MUSIC
Friday, June 20, 2025
Chilly, France
The En Avant Noah association organized the first edition of “Noah Fête la Musique” in Chilly. It was a festive and community-spirited evening that brought together nearly 200 people for a live concert, a refreshment stand, and a team of dedicated volunteers. The event was all about music, sharing, and solidarity.
Your support makes all the difference
Every donation directly supports the work of the specialists who assist Noah on a daily basis.
Blog
What we're doing for Noah
Every day, we build his future together
FIREFIGHTERS WITH BIG HEARTS!
Sunday, December 21, 2025
, Chilly, France
On Sunday, December 21, 2025, the En avant Noah association shared a warm and friendly moment with the Chilly Fire Department during their traditional sauerkraut dinner. The event was marked by a spirit of camaraderie and solidarity.
2025 Annual General Meeting
Wednesday, December 17, 2025
, Chilly, France
On the evening of Wednesday, December 17, 2025, the annual general meeting of the En avant Noah association was held. It was an important occasion for reflection, discussion, and fellowship, marked by the re-election of the board and the election of a new secretary.
CHECK PRESENTATION BY BASKETBALL VETERANS
Thursday, December 11, 2025
, La Balme de Sillingy, France
On the evening of Thursday, December 11, 2025, a ceremony was held to present the check for the proceeds from the Bati Fair. This charitable event, organized by basketball veterans, was made possible thanks to your support and generosity.
Join our cause
Become a member of the association and play an active role in supporting Noah